Archive for December, 2009

Letter_P

Most things in life are ultimately personal. Certain unnamed authors, for example, can launch a new blog with grand ambitions, only to have personal holiday and family matters divert their attention for a few weeks (ahem…sorry about that!). “Personal” often trumps public, beats out ambitious, and generally jumps first in line before many other factors in our lives.

That’s also true in the real world aspects of genetic and genomics. When someone thinks about understanding their genetic code, lots of factors come into play, many of them deeply personal. But in official circles, such personal issues often get relatively little attention. For the genomic era to take off, that needs to change.

That idea may sound counterintuitive. Since everyone’s DNA ultimately so individual, how can personal aspects of testing and genome analysis gotten short shrift? The answer is summed up by four letters – “ELSI.”

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"As you read these pages, I hope you will be inspired to explore how you might use genetic information to improve your own health."
- Catherine Wicklund, MS, CGC
President, National Society of Genetic Counselors, 2007
from her foreword to The Genome Book

About the authors

April Lynch is an author whose work focuses on health and genetics. As an award-winning journalist, she directed coverage of science, health, and medicine for The San Jose Mercury News, Silicon Valley's leading newspaper. She has also written for a variety of other organizations, including leading university textbook publisher Pearson Education and genomics firm Navigenics. Her work on the book and this blog reflects her views, and not those of any employer or organization.


Vickie Venne, MS, CGC, is celebrating 30 years as a genetic counselor. She worked in prenatal, pediatric, and laboratory settings before joining the Hunstman Cancer Institute at the University of Utah. In addition to caring for patients, she has taught for the California Department of Education and the University of Utah's graduate program in genetic counseling. She has also served as president of the National Society of Genetic Counselors and the local affiliate of the Susan G. Komen Breast Cancer Foundation. Her work on the book and this blog reflects her views, and not those of any employer or organization.